Difficulties in the emotional state of young people affected by retinal degeneration and their families
Abstract
Several studies have highlighted the emotional and functional changes resulting from visual loss in people with degenerative retinal diseases such as Retinitis Pigmentosa (RP). The aim of this study was to determine the possible presence of depression and / or anxiety in youth with Retinitis Pigmentosa and their families against a group without visual disturbances. The sample consisted of 78 people in three groups: 22 people affected by RP, 22 families and 34 individuals formed the control group. All were assessed with the STAI Anxiety Questionnaire and the Beck Depression Inventory. The results, using a MANOVA and post-hoc tests, showed mild depression in those affected and higher levels of anxiety, state and trait, both in themselves and in their families. It concludes by recommending assess these variables after the diagnosis of the disease and after a while, in order to provide adequate psychological support to both the affected and the relatives, it will resolve any problems associated with the progression of the disease, improve your emotional and quality of life for both.
Downloads
References
Agudelo, D.M., Casadiegos, C.P., & Sánchez, D.L. (2009). Relación entre esquemas maladaptativos tempranos y características de ansiedad y depresión en estudiantes universitarios. Universitas Psychologica, 8(1), 87-104.
Augustin, A., Sabel, J.A., Bandello, F., Dardennes, R., Maurel, F., Negrini, C., Hieke, K., & Berdeaux, G. (2007). Anxiety and Depression Prevalence in Age-Related Macular Degeneration. Investigative Ophtalmology & Visual Science, 48(4), 1498-1503.
Beck, A.T., Rush, A.J., Shaw, B.F., & Emery, G. (1979). Cognitive therapy of depression. New York: Guilford Press.
Bittner, A.K., Edwards, L., & George, M. (2010). Coping strategies to manage stress related to vision loss and fluctuations in Retinitis Pigmentosa. Journal of Optometry, 81(9), 461-468.
Cimarolli, V., & Boerner, K. (2005). Social support and well-being in Adults who are visually impaired. Journal of Visual Impairment and Blindness, 99(9), 521-534.
Fernández, E. (2007). Retinosis pigmentaria: Preguntas y respuestas. Elche: Cátedra Bidons Egara.
Fuhr, P.S.W., Liu, L., & Kuyk, T.K. (2007). Relationships between feature search and mobility Performance in persons with severe visual impairment. Optometry and Vision Science, 84, 393-400.
Garaigordobil, M., & Bernarás, E. (2009). Self-concept, Self-esteem, Personality Traits and Psychopathological Symptoms in Adolescents with and without Visual Impairment. The Spanish Journal of Psychology, 12(1), 149-160.
Geruschat, D., & Turano, K. (2002). Connecting research on Retinitis Pigmentosa to the practice of orientation and mobility. Journal of Visual Impairment and Blindness, 96, 69-85.
Gutiérrez, S.M. (1995). Retinosis Pigmentaria: Clasificación y tratamiento. Oviedo: Universidad de Oviedo.
Hahm, B., Shin, Y., Shim, E., Jeon, H., Seo, J., Cheng, H., & Yu, H. (2008). Depression and the vision-related quality of life in patients with retinitis pigmentosa. British Journal Ophthalmology, 92, 650-654.
Herse, P. (2005). Retinitis Pigmentosa: Visual Function and Multidisciplinary Management. Clinical and Experimental Optometry, 88(5), 335-350.
Horowitz, A., & Reinhardt, J. (2000). Mental health issues in visual impairment: Research in depression, disability and rehabilitation. In B. Silverstone, M. Lang, B. Rosenthal and E. Faye (Eds.). The Lighthouse handbook on vision impairment and vision rehabilitation: Vol. 2. Vision rehabilitation (pp. 1089-1109). New York: Oxford University Press.
Joffre, V.M., Martínez, G., García, G., & Sánchez, L. (2007). Depresión en estudiantes de medicina. Resultados de la aplicación del inventario de depresión de Beck en su versión de 13 ítems. Revista Argentina de Clínica Neuropsiquiátrica, 14(1), 86-93.
Kiser, A., & Dagnelie, G. (2008). Reported effects of non-traditional treatments and complementary and alternative medicine by retinitis pigmentosa patients. Clinical and Experimental Optometry, 91(2), 166–176
López-Justicia, M.D., Fernández de Haro, E., Amezcua, J.A., & Pichardo, M.C. (2000). ¿Difieren en autoconcepto los adolescentes con baja visión de los adolescentes con visión normal? Integración, 33, 14-20.
López-Justicia, M.D., & Nieto, I. (2006). Self-concept of Spanish young adults with RP. Journal of Visual Impairment and Blindness, 100(6), 366-370.
López-Justicia M.D., & Pichardo M.C. (2001). Self-concept and gender in Spanish low-vision adolescents. Journal of Visual Impairment Research, 3(1), 7-16.
López-Justicia, M.D., Polo, M.T., Fernández, C., Chacón-López, H., Díaz, C., & Chacón, A. (2011). Depresión y ansiedad en personas con retinosis pigmentaria, sus familiares y un grupo control. Universitas Psychologica, 10(2), 467-476.
McCrae, R.R., & Costa, P.T. (1990). Personality in Adulthood. New York: The Guilford Press.
Nemshick, L.A., Vernon, McC., & Ludman, F. (1986). The impact of retinitis pigmentosa on young adults: Psychological, educational, vocational and social considerations. Journal of Visual Impairment and Blindness, 89, 859-862.
Reinhardt, J.P. (2001). Effects of positive and negative support received and provided on adaptation to chronic visual impairment. Applied Developmental Science, 5, 76-85.
Rundquist, J. (2004). Low Vision Rehabilitation of Retinitis Pigmentosa. Journal of Visual Impairment and Blindness, 98, 718-724.
Sacks, S., Wolffe, K., & Tierney, D. (1998). Lifestyles of students with visual impairments: Preliminary studies of social networks. Exceptional Children, 64(4), 463-478.
Sánchez, M.P., Aparicio M.E., & Dresch, V. (2006). Ansiedad, autoestima y satisfacción autopercibida como predictores de la salud: diferencias entre hombres y mujeres. Psicothema 18(3), 584-590.
Spielberger, C.D., Gorsuch, R.L., & Lushene, R.E. (2002). Manual STAI. Cuestionario Ansiedad Estado – Rasgo. Madrid: TEA Ediciones.
Strougo, Z., Badoux, A., & Duchanel, D. (1997). Problèmes psycho-affectifs associés à la rétinopathie pigmentaire. Journal Français D´Ophtalmologie, 20, 111-116.
Vázquez, F. & Torres, A. (2007). Análisis sobre la investigación de la prevención de episodios nuevos de depresión. Clínica y Salud, 18, 221-246.
Wahl, H., Becker, S., Burmedi, D., & Schilling, O. (2004). The role of primary and secondary control in adaptation to age-related vision loss: A study of older adults with macular degeneration. Psychology and Aging, 19, 235-239.
Zeiss, A.M., Lewinsohn, P.M., Rohde, P., & Seeley, J.R. (1996). Relationship of physical disease and functional impairment to depression in older people. Psychology and Aging, 11, 572-581.
In order to promote the development and dissemination of research in education in Latin America, the Ibero-American Journal for Educational Research and Development (RIDE) adhered to the Budapest Open Access Initiative, which is why it is identified as a Open access publication. This means that any user can read the complete text of the articles, print them, download them, copy them, link them, distribute them and use the contents for other purposes. Creative Cummons licenses allow users to specify the rights to use an open access journal available on the Internet in such a way that users know the rules of publication. Authors who publish in this journal accept the following conditions: Authors they keep the author's rights and give the magazine the right of the first publication, with the work registered with the attribution license of Creative Commons, which allows third parties to use the published material whenever they mention the authorship of the work and the first publication in this The authors can make other independent and additional contractual agreements for the non-exclusive distribution of the version of the article published in this journal (eg, include it in an institutional repository or publish it in a book) as long as they clearly indicate that The work was published for the first time in this magazine. Authors are allowed and recommended to publish their work. low on the Internet (for example on institutional or personal pages) before and during the review and publication process, as it can lead to productive exchanges and to a greater and faster dissemination of the published work